Food Allergy Experience

About

Hey there! I’m so glad you’ve found your way here. This blog is all about food allergies.

My Goal: to provide information, recipes, and experiences regarding food allergies. I want it to be a place of support for others with food allergies. I also want it to be a place where those who are curious about food allergies can receive information.
About Me: I am the mother of two wonderful children. My eldest is a non-allergic daughter. My youngest has severe food allergies to milk, soy, wheat, eggs, peanuts/nuts, mango, and shellfish. He’s had one anaphylaxis episode after ingesting milk.
Our Journey: My son developed eczema at two months which continued to increase in severity. I noticed that as I nursed him, his itching and redness worsened. At four months we were referred to a dermatologist who prescribed multiple steroid creams and antihistamines. At one point the poor little guy was getting an antihistamine every four hours! And he wasn’t sleeping. He itched on everything he could rub against. Several times he’d itch himself until he was bleeding.

I asked several medical professionals if this could be a food allergy. The dermatologist refused and still refuses to acknowledge his allergies. My pediatrician stated it would be uncommon but had me cut diary out of my diet as it was most likely the culprit. After following a dairy-free diet (I was nursing) there was little response in his skin. So, I went back to eating whatever I wanted.

At six months, my son developed a MRSA abscess and we were hospitalized for five days. The internist treating him said this was the worst case of eczema she’d ever seen in her entire time practicing. We finally got our referral to an allergist.

The spring of 2012 we got to add Asthma to our list of diagnosis after having respiratory distress and wheezing while taking a bath. Shortly after this episode we were told he was allergic to Mangos, which he’d eaten the night of the respiratory distress.

The Diagnosis: His skin was too inflamed to do a skin test, so he was tested for the top 8 allergies and pets. He came back severely allergic to 5 of the top 8 and were encouraged to avoid all tree nuts due to the peanut allergy. Since the original testing he is now allergic to 6 of the top 8 since he’s become allergic to shellfish. We recently found out he’s allergic to Mango.

The Emotional Ride: Immediately following the diagnosis, I went from shock to depressed. I felt hopeless and worried for his future. I worried about birthdays and him feeling like a normal child. I worried about ensuring proper nutrition. Mostly I feared anaphylaxis and keeping him safe.

Since the diagnosis, I’ve learned to live and breathe again. I still think constantly about food and worry about what he’s doing. But, I feel so much more informed and ready to tackle the day. I have a light in a very dark tunnel. It’s not perfect and I don’t feel strong everyday. But through education I’ve found peace and found that he can have a normal happy life.

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15 Comments

  1. pamasaurus

    We have nominated you for a Versatile Blogger Award because we think your blog is pretty awesome!

    http://omnomalicious.wordpress.com/2012/04/18/versatile-blogger-award/

  2. Our son has many of the same allergies. I agree, it’s pretty overwhelming at times.

    • Josh- I’m glad you found my blog! I’m looking forward to reading yours and getting the “dad” perspective on food allergies.

  3. Thanks! You clearly have a lot of experience with food allergies in your family and you’ve given it a lot of thought. I’m glad to have found your blog.

  4. I have celiac so I’ve been gluten-free for years and I have a life-threatening peanut allergy (ended up in the ER just because someone next to me ate something with peanuts in it), but I also found out on Friday, thanks to allergy testing, that I’m also allergic to soy, cow’s milk, eggs, shell fish, and six other things. It really is overwhelming; starting over from scratch.

    ~Kelsey

    • Hi Kelsey! Nice to meet you and I’m glad you’ve found my blog 🙂

      • I’m glad I found your blog too! I’m feeling pretty lost and overwhelmed about how to feed myself now. So finding blogs by other people who are dealing with many, many allergies too is encouraging. 🙂
        ~Kelsey

  5. Celiac and Allergy Adventures

    My childhood was much like your son’s. It’s very hard and challenging now, but as he grows older, he will be at an advantage over those who are diagnosed as adults because it will be a second nature to him. I know hearing things like that won’t help you at the moment, but there is a light at the end of the tunnel. Trust me, as someone who has severe asthma, severe food allergies and severe eczema for most of my life, he CAN and WILL live a happy and normal life. There will surely be bumps in the road, but with knowledge and awareness, he will make it through 🙂

  6. Living with allergies is a learning experience every day! Lovely Blog! 🙂

    • Thanks! I’m so glad you found my blogs.

  7. My 6 yo son has eczema too, it but has decreased in severity since birth and is now much more manageable. But I know exactly what you’re going through, worried sick about all the scratching and interrupted sleeps (for both he and I). My thoughts are with you. Best of luck.

  8. Jackie

    Hi there, Like your son I had eczema very early, at 5 wks old I was hospitalized and many Dr’s told my mom that it couldn’t possibly be allergies as I was far too young. I was not too young and I did have allergies, many allergies! Over time I out grew quite a few but I still do have many and am still discovering new ones even at 38 yrs old. Currently I am allergic to tree nuts, peanuts, sesame seeds, sunflower seeds, pectin, shellfish, bananas and oranges. I currently eat GF and DF, DF because I have sinus issues which dairy aggrevates, GF because when I eat it, it causes stomach discomfort, I have not been tested in quite some time and don’t know if maybe the wheat and dairy are actually allergies or intolerences so it’s just easier to say that I am allergic. I outgrew the eczema thankfully but still live daily with allergies so I totally understand what you are going and more specific what your son is going through. Very happy to have found your blog! 🙂

    • I’m so glad you found my blog too! I keep hearing from more and more people who were symptomatic young (before the 1st birthday) and the doctors denying it could be an allergy. Thanks so much for stopping by and commenting.

Trackbacks

  1. Embrace: Failure « Tales of the Working Mom
  2. More Inspiring Food Allergy, Eczema and Asthma Bloggers | The Food Allergy Chronicles

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